Russell has been diagnosed with epilepsy. He has focal seizures caused from abnormal activity in the left frontal lobe of his brain. He is on medication and seems to be doing well. Yesterday, just before we got the diagnosis I got this letter out
explaining what had happened up until then, but just before I finished the neurologist came...and so I didn't have time to copy to this
Blogg.....
Just wanted to let everyone know that Derek and I are at
TMC in Tucson with Russell who has been having these episodes that may be seizures. Apparently he has been having these at night for some unknown amount of time and Hunter has been aware, but we were not let in on the news until Saturday night when
Tayler and Hunter saw him have one. On Monday the school nurse called telling me he had a strange kind of event in the class room and that the teacher who normally is NOT rattled, was. I called him later that day (I was in
Safford) and he had an event while I was on the phone with him. Later that evening Derek and I saw him have one, and I wouldn't have called it a seizure but there was no real good way to describe it. We had to take a friend to the Hospital and decided to take Russell with us and visit the ER. While there Russell had an EKG and a CAT scan (he does have a brain BTW and most importantly there were no masses!) They also did some blood work and a urine sample. ALL came back normal. He then had an event while in the ER while the PA was talking to a Neurologist in Tucson. I asked the PA if she would call that a seizure and she said yes. The Neurologist requested the we see our family doc the next day and have him order an MRI and an EEG and then see her. We left the hospital at 3:30 a.m. and it was snowing up a storm. We slowly drove home on snow packed roads and got in at about 4:30 a.m. Derek (bless his heart) got up with the school kids and got them off, I slept in until 7:30 and we went back to
Safford with Russell for a doc
appt. expecting to have
appts set up for the future. The ball got rolling and hasn't stopped since. The doctor did set up appointments, we left
Safford right away with a room number and bed assignment! We still thought that it would be just for the duration of the tests, and no more. When we got there they informed us that he was admitted to the hospital and would be staying the night. Russell continued to have episodes after leaving the ER and had one here at
TMC. They gave him some anti seizure med through an IV, and now orally and he has not had another one for almost 24 hours now! They had to wake Russell at 4 a.m. this morning and keep him awake until the EEG, I guess a sleep starved brain is more likely to evoke a seizure, and they would have liked to have seen one, but Russell did not perform. We are now waiting for the Neurologist to come and tell us what the results of the testing showed and make a treatment plan. I believe she said she would be in after "clinic" this evening...but I don't exactly know what time that will mean. We are very much hoping that we will be able to go home tonight and try to resume a "normal" life!
When I know more, I'll post. I have felt mostly calm and at peace through the series of unfortunate and fortunate events. I feel blessed that we were able to get all the testing done so quickly so I don't have to wait and let my mind wonder what it could be. We have been greatly enlightened about possible explanations for some behaviors we have seen in Russell. We pray that we will be given the answers that we need.